Genetic testing company 23andMe has filed for bankruptcy, leaving customers with concerns about their personal data. The company, which offers DNA analysis and genetic disease research, has 15 million users worldwide. Of those, 85% have given consent for their data to be used in research.
As the company searches for a buyer, consumer advocates are urging customers to delete their data from the website. Since 23andMe is not subject to HIPAA regulations like healthcare providers, customer data could potentially be shared with a future buyer.
To protect themselves, customers can follow a step-by-step guide provided by California Attorney General Rob Bonta to delete their account and destroy their DNA test sample. This will help prevent any unauthorized use of personal health information.
Source: https://www.sciencefriday.com/segments/23andme-bankrupcy-data-delete