Consumer-genomics company 23andMe has filed for bankruptcy and is auctioning off its vast genetic database, which includes DNA information from over 15 million people worldwide. The move has sparked fears about how individual genetic data may be used under new ownership.
Researchers who rely on the company’s data to investigate genetic traits are hopeful that a new owner will continue to offer access to the information. However, bioethicists warn that there is uncertainty around the potential risks of this sale, particularly if law enforcement agencies gain access to the database.
The 23andMe database includes DNA information from customers who have opted-in for research use, with around 80% consenting to their data being used in scientific studies. However, some fear that a new owner could change how the data is collected and used, potentially leading to misuse by insurance companies or law enforcement agencies.
The proposed sale has prompted concerns about genetic data privacy and the potential risks of sharing sensitive information. Bioethicists emphasize that individuals should take steps to safeguard their personal information, such as deleting their accounts or opting out of research participation.
As a result of the bankruptcy filing, 23andMe is seeking a buyer who shares its commitment to customer data privacy. The company has assured that any new owner must abide by its current privacy policy, but some worry that this may not be sufficient to protect sensitive genetic information.
Source: https://www.nature.com/articles/d41586-025-01004-3