Mast cell activation syndrome (MCAS) is a rare and incurable condition that affects the immune system, causing frequent reactions and anaphylaxis. For individuals like me, who have been diagnosed with MCAS, life can be unpredictable and limiting.
My diagnosis came at 18 in 2017 after I suffered anaphylactic shock from eating a mint chocolate-chip ice cream. Doctors initially thought it was stress-related or due to an ex-boyfriend’s dietary habits. However, as my symptoms worsened, they recognized the severity of MCAS.
Hospitalization followed, where doctors ran trials to identify safe foods, which narrowed down to oats, eggs, bacon, and water. Taking mast cell stabilisers and antihistamines helped me manage extreme reactions, allowing me to enjoy more food options and socialize with friends.
Despite progress, setbacks occurred when I experienced anaphylactic shock from eating a salad in the Caribbean. The doctors decided to fly me home, and since then, my diet has remained limited to oats, water, and a hypoallergenic formula rich in vitamins and minerals.
Living with MCAS demands creative solutions and sacrifices. I avoid pets, feathers, wool, and certain social situations due to allergies. My job as a healthcare recruiter requires careful planning, and dating can be challenging – finding someone who shares my food restrictions is essential.
However, despite the challenges, I’ve learned to adapt and find joy in life’s simple pleasures. I explore nature, engage in hobbies, and prioritize self-care. MCAS has taught me compassion for those with hidden disabilities and the importance of awareness and understanding.
Working with doctors to reintroduce new foods is an ongoing process, fraught with setbacks but also holding promise. While there’s no guarantee, I’m hopeful that one day my diet will expand. For now, I focus on getting through each day and appreciating the people and experiences that enrich my life.
Source: https://www.theguardian.com/lifeandstyle/2025/mar/21/experience-im-allergic-to-nearly-everything