The Trump administration has scrapped its plans for a national registry of individuals with autism, just days after unveiling the initiative as part of a new health program. The system would have linked personal medical records to data from pharmacies and smartwatches.
Criticism from scientists, privacy experts, and autism advocates led to the decision to pull back. Administration officials walked away from the plan due to concerns over ethics, privacy, and the intended use of the registry.
Source: https://www.washingtonpost.com/health/2025/04/25/autism-registry-privacy-rfk-research