A recent study conducted by researchers has uncovered the long-lasting negative effects of misdiagnosing autoimmune diseases as mental health or psychosomatic conditions. The study, which involved over 3,000 people with autoimmune disease, found that those who received such misdiagnosis experienced feelings of shame, self-doubt, and depression, with some even reporting suicidal thoughts and attempts.
The researchers discovered that these negative emotions often remained strong for years after the initial misdiagnosis, leaving deep psychological scars. Over 70% of participants reported that the misdiagnosis still upset them, while over 80% said it had damaged their self-worth.
One study participant shared her traumatic experience with a doctor who told her she was making her own pain: “Those words have made me very anxious and depressed.” The researchers chose to use this testimony in the title of their study because it accurately reflected their findings and symbolized their commitment to giving voice to often unheard patients.
The study also highlighted the impact of misdiagnosis on patients who reported symptoms as children, which continued to affect them decades later. Many doctors interviewed for the study acknowledged that misdiagnoses were common in autoimmune diseases but were surprised by the severity and long-lasting effects.
However, many of these doctors expressed a desire to improve their patients’ experiences, particularly through empathetic listening and support. The researchers emphasized that clear communication and a willingness to consider multiple diagnoses are essential in providing proper care for patients with complex symptoms.
Source: https://theconversation.com/all-in-your-head-when-doctors-misdiagnose-autoimmune-disease-as-psychosomatic-250953